An adorable baby has finally recovered after her turned yellow when a rare disease destroyed his liver
An adorable baby turned yellow after a rare disease destroyed her liver has finally recovered thanks to a lifesaving transplant.
Hayden Graham, now nine months old, from Clydebank, West Dumbartonshire, was diagnosed with a rare strain of billiary atresia – which causes blockages in the liver – at just three days old.
Her terrified parents, Marc and Nicole Dearie, both 22, watched in horror as their daughter’s skin and eyes turned yellow.
But despite doctors best efforts, Hayden’s liver was destroyed beyond repair and she was placed on the organ transplant list.
Eight weeks later, a match was found and she underwent a lifesaving 10 hour operation in July.
Instantly, Marc and Nicole noticed a difference, for the first time since being born, her skin was pink not yellow.
Now three months on, Hayden has come on leaps and bounds and is hitting all her milestones.
The family are now raising awareness for the importance of organ donation.
Nicole, a full time mum, said: “We were so shocked when Hayden’s skin began turning yellow.
“The doctors tried everything before we were placed on the transplant list.
“Without a lifesaving transplant our baby wasn’t going to survive.
“My pregnancy had been completely normal and it was awful watching her deteriorate so suddenly.
“Hayden’s bile levels were dangerously high and despite having an operation to remove her gall bladder and attach her liver directly to the intestine to increase bile flow, she become critically ill.
“We were placed on the transplant list at the start of June and we were only on the list eight weeks before a match was found.
“The thought of our baby having such a huge operation was terrifying but we knew it was a matter of life or death.”
Hayden first started to turn yellow at just a few hours old – but doctors reassured Marc and Nicole that Jaundice was common and normally easy to treat.
Marc added: “In the early stages we assumed the UV lamps and medication would help but it soon became clear it was far more serious than we first thought.
“At just three days old doctors realised Hayden had a rare strain of billiary atresia which was causing dangerous blockages in her liver.
“It wasn’t functioning properly and after searching on Google it seemed a transplant was her only option so we prepared ourselves before being told the news.
“Waiting was awful, it was waiting for someone to die so your daughter could be saved.
“It was impossible not to feel saddened for the other family who have lost someone.
“And we couldn’t thank Hayden’s donor enough, they have saved her life and given her a future.
“Seeing her back home now is like being with a different baby.
“Her eyes and skin were yellow but now she’s pink and healthy.
“She has regular scans to ensure her liver is working properly and she’s need to take anti-rejection medication for the rest of her life.
“But she’s alive and hitting all her milestone, we couldn’t be more proud of her, she’s a little fighter and only spent three weeks in hospital recovering.”
Both Marc and Nicole are now campaigning for the people to sign up to the organ donor register.
Nicole said: “So many babies born with the same condition as Hayden don’t survive because of a shortage in organ donors.
“Our daughter was one of the lucky ones and we’re so grateful.
“But now we are aiming to give something back and have already set up our first fundraising event in March.”
Alison Taylor Chief Executive of Children ‘s Liver Disease Foundation commented
“Many people do not realise that liver disease is something which can affect children yet two children are diagnosed every day in the UK. We provide those families with information and emotional support and fund research into the causes of childhood liver disease.
We are delighted to hear that Hayden’s transplant has been a success and look forward to hearing more of her progress.”
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